On May 2nd, Teddy had his routine 2-month appointment. He was doing well, but three things stood out to his pediatrician: a large, flat spot on the side of his head, faster head growth than body growth, and a hint of laziness in his left eye. She referred us to an eye doctor and mentioned we would monitor the head growth over the next four weeks before considering a scan.

On May 7th, Teddy saw an eye doctor who confirmed that he has no vision in his left eye and limited vision in his right eye. Concerned about the head growth, the eye doctor suggested not waiting for the scan. She consulted with my pediatrician, who agreed that the scan should happen soon. The pediatrician promptly contacted the neurology team at Seattle Children’s Hospital, who advised us to head to the ER immediately; they were ready and waiting for Teddy.

Over the next four days, Teddy underwent a battery of tests, including a CT scan, MRI, daily blood tests (limited due to his age), full-body X-rays, an EKG, an echocardiogram, ultrasounds of each major organ, and received a unit of blood products.

After consultations with eight specialties and 19 doctors, Teddy was diagnosed with Osteopetrosis.