Teddy was admitted to Seattle Children’s 71 days ago and is currently 56 days post-BMT and on day 49 in the ICU. It has been a long and challenging journey. We have overcome hypocalcemia, seizures, sepsis, acute respiratory failure, infections, a blood clot, a brain bleed, SOS, and several other hurdles. While we are still Read more

While the news of Theo’s engraftment was wonderful, his body is struggling to recover from the transplant process. One Sunday night, he was intubated because his lungs couldn’t keep up and his oxygen levels were not in safe ranges. He is also currently fluid overloaded and has not responded to diuretics as hoped, so we Read more

The test results are in, and he has achieved 100% engraftment. This means that his blood DNA is now fully Nolan’s, which should effectively reset his bones and prevent osteopetrosis from posing further issues. While we still have a long road ahead to restore his health and return him to normal boyhood activities, these results Read more

We are currently 31 days post-transplant and 24 days into our ICU stay. We’re still deep in the transplant process. The initial cells have arrived but were needed for significant repair right away and are working hard to take root while fixing the damage in his body. Osteopetrosis is one of the most challenging bone Read more

After a brutal 16 days the cells have arrived!! He is still in the ICU and getting lots of medical support but the cells are growing and multiplying. Read more

On Monday, doctors were able to collect more than enough cells from Nolan for a transplant into Teddy. They actually gathered three times as much as needed, so we are storing the extra in case we need to attempt the transplant again or for future use. Nolan is thriving and already back to jumping on Read more

I’m not really sure how to recap or even talk about the past week, but it was the hardest of my life. I am in absolute awe of the strength of Teddy and Nolan. They both went through all the testing with such grace and resilience; it was inspiring to watch. After all the tests, Read more

On Friday, we received a call to move up the transplant date to June 10th. This meant that Teddy and I checked into the children’s hospital yesterday. The sooner the transplant happens, the better his odds will be. I know many of you are concerned that this process isn’t moving fast enough, but we have Read more

This week was full of meetings with doctors to discuss the next steps and timelines. Below is a recap of what we can expect in the coming weeks: May 28 – June 4: Out-patient prep will begin for both Theodore and Nolan. They will both have blood drawn for labs to ensure good system function Read more

It has been confirmed that Nolan is a full match! We are still confirming with the national registry as a backup plan, but as of now, it looks like Nolan will be our donor. We will meet with the doctor early next week to confirm the timeline, but we expect that the transplant will happen Read more