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We are currently in the calm before the storm. Teddy is home and stable. He will be in multiple times a week for testing and vitals while we wait on the bone marrow transplant (BMT), but we are blessed to live close enough that they let us come home for the time being. BMT Prep Read more

We are currently awaiting final genetic testing to confirm the diagnosis and treatment, but in the meantime, they are proceeding with starting the bone marrow transplant process. Finding a donor – Ideally, the donor is a matched biological sibling, so in Teddy’s case, that means Nolan. If Nolan is a match, he is our best Read more

What is osteopetrosis? It’s a very rare bone disorder that prevents bones from shedding and causes them to grow denser. This uncontrolled growth leads to significant issues, including problems with vision, hearing, appearance, and immunity. If left untreated, this condition typically results in the death of most children by the age of 10. Fortunately for Read more

On May 2nd, Teddy had his routine 2-month appointment. He was doing well, but three things stood out to his pediatrician: a large, flat spot on the side of his head, faster head growth than body growth, and a hint of laziness in his left eye. She referred us to an eye doctor and mentioned Read more