I’m not really sure how to recap or even talk about the past week, but it was the hardest of my life. I am in absolute awe of the strength of Teddy and Nolan. They both went through all the testing with such grace and resilience; it was inspiring to watch.

After all the tests, labs, and scans, it has been determined that the boys are a perfect match. Nolan is an ideal donor, and Teddy is in a good position to handle the transplant. On Monday, Teddy will start his conditioning regimen, which is essentially a series of chemotherapy treatments. He will undergo a cocktail of chemotherapies for seven days, and we’ve been warned that these treatments are quite brutal and toxic. The next two weeks will be very challenging.

Nolan will continue to be monitored this week and will receive iron supplements to minimize the impact of the donation on him. The donation procedure will take place on the morning of the 10th and is an outpatient procedure. He will experience some pain for a few days but should recover quickly and return to normal soon.

Right now, our focus is on the transplant and getting through the next couple of months. We’ve had some conversations with our medical team about the long-term outlook, which I know everyone is wondering about. In the long term, Teddy should have a normal life, except for a few issues, such as his vision, which may improve over time. However, this disorder is so rare that there are many uncertainties. The mid-term period will be difficult, as our lives will look very different for the next several years while Teddy builds an immune system from scratch. Any fever or signs of sickness will mean a minimum 48-hour hospital stay. We’re still coming to terms with this reality.

I will update you all again after the transplant on the 10th. Thank you for your prayers and support.