What is osteopetrosis? It’s a very rare bone disorder that prevents bones from shedding and causes them to grow denser. This uncontrolled growth leads to significant issues, including problems with vision, hearing, appearance, and immunity. If left untreated, this condition typically results in the death of most children by the age of 10.

Fortunately for Teddy, a bone marrow transplant can cure this disorder. If done soon enough, it can also halt or even reverse some of the symptoms we have already observed, such as his vision problems.

If you use Dr Google the results are pretty grim BUT we are surrounded by the best doctors in the world and they are hopeful they will pull off this miracle.